Bloggers Unite for EndoMarch: Week Three – An Open Letter to Congress

January 28, 2014

Dear [Congressperson/Senator],

I am writing to let you know about an upcoming even in Washington, D.C. I am unable to attend this event personally but I support this cause wholeheartedly and I’d like you to as well. On March 13, 2014 women AROUND THE WORLD will be marching in an effort to spread awareness and educate governments, health care professionals and the general public about a disease called Endometriosis. This is a disease that affects 1 in 10 women. It causes debilitating pain. It causes infertility and pregnancy loss. The only effective treatment is excision surgery. It takes most women TEN YEARS to be properly diagnosed. Most OBGYNs are not properly trained to treat this disease. Many well-meaning OBGYNs treat it incorrectly, often resulting in worsening symptoms, because they are not properly trained.

I myself, having been diagnosed years ago in another state, recently saw a highly recommended OBGYN here in [major US city]. She told me everything she COULDN’T do to help me. She was completely unaware that an endometriosis excision specialist was practicing 45 miles away in [city]. Perhaps she’s a good obstetrician. I wouldn’t know since this disease (either directly or indirectly) has left me infertile and claimed most of my reproductive organs. But obviously she wasn’t properly trained to treat this disease.

This happened to me in 2013 in a major U.S. city. Me, an educated middle class woman with good health insurance and access to quality medical care. What about all the women who don’t have insurance? Or the women who don’t know how to do their own research to find a specialist? Or the women who do but don’t have the means to travel (often out of state) to get that care? Or the women whose insurance company says that doctor is out of network so surgery will not be covered? What about all the younger women and teenage girls being told that painful periods are normal and they should just be stronger because doctors are not trained to spot the symptoms? Meanwhile this disease is wreaking havoc on their bodies and their doctors are making them question their own self worth.

For years women have been told this pain is normal. Or that it’s all in their heads. That they are not strong enough. That it is their fault they are in pain. That they are making it up for attention. That they are drug-seekers. Meanwhile they are losing jobs, babies, quality of life, organs/organ function (and not just reproductive organs). We are told we are not strong enough or that these things are due to other causes/conditions.

And so we suffered in silence.

No more.

It’s time to end the silence.

We need awareness. We need research. We need doctors who are better trained.

Now we are speaking out. And we’d like your support.

This disease may not actually kill women like breast cancer does but it’s every bit as serious a disease as cancer. If you are not moved to help women who are suffering by your heart then, if you prefer, I’ll give you a financial incentive to support this cause. As a number crunching data geek it pains me to say that I have no idea what the exact figures are but I have to wonder how many billions of dollars are wasted on surgeries for endometriosis that do not actually help the patient because they are the WRONG KIND OF SURGERY? Women with endometriosis, once they are diagnosed (which can currently only be accomplished through surgery), have A LOT of surgery in their lifetime. And it is often the wrong surgery. Better education leading to only performing EXCISION SURGERY could cut healthcare costs in the short term by eliminating the need to repeat a botched surgery. More research could lead to a diagnostic process that doesn’t involve surgery at all. Or maybe even an effective treatment that doesn’t involve cutting a woman open. Who knows what research could discover?

For more information about this worldwide event and about this disease please see http://www.millionwomenmarch2014.org/

P.S. Thank you very much for passing the Affordable Care Act. Although I currently have insurance through my employer I was once denied insurance for a pre-existing condition. Guess what condition? Endometriosis.

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5 Responses to “Bloggers Unite for EndoMarch: Week Three – An Open Letter to Congress”


  1. […] I suppose it wouldn’t be a blogging challenge if I was on time with every post. This one is a bit late as it’s already Week Five (how did THAT happen?). If you’d like a recap… Week One: Basic Info Week Two: Getting Personal Week Three: An Open Letter to Congress […]


  2. […] One: Basic Info Week Two: Getting Personal Week Three: An Open Letter to Congress Week Four: An […]


  3. […] am blogging. Week One: Basic Info Week Two: Getting Personal Week Three: An Open Letter to Congress Week Four: An Interview Week Five – Goals Week Six: Why Is This […]


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  5. […] wrap it up. But first, here are the previous posts: Week One: Basic Info Week Two: Getting Personal Week Three: An Open Letter to Congress Week Four: An Interview Week Five – Goals Week Six: Why Is This Important? Week Seven: Spread […]


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